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Resources

Support for Partners and Carers

Websites

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Helping Parents and Partners
Information for All Caregivers
For partners - talking to your spouse A site set up by Gillette to help people dealing with partners, parents or friends with cancer. This page is for partners
For Children- A site set up by Gillette to help people dealing with partners, parents or friends with cancer. This page is for kids
Being a carer
Being a carer- some Australian links
A Guide for Daughters Whose Mothers have Advanced Breast Cancer
For families and Children- KIDSCOPE is an organization which has been formed to help families and children better understand the effects of cancer and chemotherapy in a parent
Breast cancer: common reactions of children and how to help
Cancer Supportive Care.com. Based on the book, Cancer Supportive Care by Ernest H. Rosenbaum, MD & Isadora R. Rosenbaum, MA, Somerville House Publishing, Toronto, 1998.
Communicating with children is vital when Mom has breast cancer: Health Beat, University of Washington, 1995.
Enhancing sexuality and self-esteem after a breast cancer diagnosis: from Oncolink.
KIDSCOPE: educational material for children and families where a parent has cancer.
Listen with your heart: talking with the cancer patient. American Cancer Society Meeting sexuality needs of women with breast cancer: from Oncolink
Taking time: support for people with cancer and the people who care about them. National Cancer Institute, 1990.
Talking to children: suggestions from CancerHelp UK.

Books

Title Author ISBN (or where to access) Topics
Breast Cancer: Sharing the Decisions
Anna Maslin, Trevor Powles 0192629670 Addresses issues relating to shared decision making and in particular those areas where a choice of treatment option involves some degree of risk/benefit analysis.
She's got What!
Carrie Lethborg and Angela Kirsner 1875271309 A book about a child's reaction to her mother's cancer diagnosis
My Mother's Breast: Daughters face their Mother's Cancer
Laurie Tarkan Taylor Publishing What happens when a woman finds out her mother has breast cancer

 

You can use the links in this section to look at these or to get copies sent to you.

Guidelines and recommendations

  • Psychosocial clinical practice guidelines: providing information, support and counselling for women with breast cancer

Reports, research and data reviews

  • An examination of procedures reimbursed under Medicare for breast disease and breast cancer in Australia, 1985 - 1996
  • Breast reconstruction: a review of research and patient and professional resources
  • Cost of diagnostic investigations for women presenting with breast symptoms, The
  • Experience of diagnosis; information and support needs of women diagnosed with ductal carcinoma in situ
  • Encouraging research into lymphoedema: a report on the summit held on 25 and 26 February 2000
  • Encouraging research into lymphoedema: a register of lymphoedema research
  • Lymphoedema: prevalence, risk factors and management: a review of research
  • Lymphoedema prevention, diagnosis and treatment. Literature search
  • Needs of children of mothers with advanced breast cancer
  • Out-of-pocket expenses incurred by women for diagnosis and treatment of breast cancer in Australia
  • Psychosocial impact of breast cancer: a summary of the literature 1986-1996
  • Psychosocial support for breast cancer patients: a review of Interventions by specialist providers. A summary of the literature 1976-1996
  • Psychosocial support for breast cancer patients provided by members of the treatment team. A summary of the literature 1976-1996
  • Specialist breast nurses: an evidence-based model for Australian practice
  • Strengthening support for women with breast cancer: a background paper
  • Supplementary report on the effects of treatment on quality of life
  • Talking about prognosis with women who have early breast cancer: what they prefer to know and guidelines to help explain in effectively
  • WEBSITE ONLY A consumer's guide to early breast cancer
  • WEBSITE ONLY Breast reconstruction: a review of the research and patient and professional resources
  • WEBSITE ONLY Satisfaction with breast cancer care: a summary of the literature 1984-1994
  • WEBSITE ONLY Strengthening support for women with breast cancer: principles, outcomes and models paper
 



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