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  • Lymphoedema is a swelling of the arm and hand which may occur immediately or at any time after surgery or radiation therapy
  • Lymph is a normal colourless fluid which forms in the body and drains into the blood through a network of vessels and nodes. Lymph nodes are filter stations which play an important part in the body's defence against infection. Muscle movements help move lymph fluids.
  • Most women who have surgery for breast cancer have the lymph nodes under their arm removed. This surgery interferes with the natural flow of lymph.
  • If the lymph nodes are removed or damaged by radiotherapy, fluid can accumulate in the tissues and swelling (oedema) occurs. This is known as lymphoedema. Untreated, this swelling may become difficult to control.
  • Most women have symptoms of swelling, numbness, discomfort and shooting pains in the arm, breast and armpit immediately after surgery. This is not lymphoedema.

Key points

  • Not all breast cancer patients get lymphoedema.
  • Experts believe that removing only the sentinel node (sentinel node biopsy) will reduce the incidence of lymphoedema (at this stage the procedure is only being done as part of a clinical trial)
  • Lymphoedema can be managed and prevented/reduced
  • The earlier lymphoedema is diagnosed and treated, the more successful the results
  • You may wish to take extra care in your daily life to reduce your risk of lymphoedema. This does not mean that you have to stop living a normal active life.

Early signs of lymphoedema

You may experience the following symptoms in your arm on the side of the operation:

  • a heavy, tight arm
  • pins and needles in the arm
  • swelling of the arm or breast or any part of these
  • numbness, temperature changes and aches in the arm and/or shoulder
  • indentations in the skin from tight clothing, your watch or jewellery
  • rings or jewellery which feel tighter than normal
  • an appearance of swelling in the arm

What triggers lymphoedema

Some factors have a much greater probability of causing or increasing lymphoedema than others.

The most important ones are:

  • Infections in the arm Perhaps resulting from cuts, injections, insect bites, scratches, burns or sunburn. Keeping skin moisturised and supple reduces the risk of infection. Treat any possible infections promptly with antiseptic. If the arm becomes red or swollen and you feel unwell, perhaps with flu-like symptoms, see your medical practitioner immediately.

  • Being overweight Excess weight may slow the lymph flow.

  • Too little or too much exercise Gentle muscle movement increases lymph flow and reduces the risk of fluids accumulating. It is better to do gentle regular exercise than occasional bursts of intense exercise. If you want to exercise vigorously, work up to it and keep an eye on the swelling. Find the exercise routine which suits you.

Other factors include:

  • Overheating your arm Sun, hot baths, spas, saunas, excessive exercise, sprains and bruises - all these cause lymph flow to increase and may overload the lymph vessels.

  • Travelling Sitting still on long car or bus trips and pressure variations in planes may reduce lymph flow. There are precautions you can take - ask a lymphoedema therapist.

  • Holding heavy parcels This can reduce lymph flow. Work up to carrying heavy items, check for swelling, find out what suits you.

  • Constrictions to the upper body or arm For example, blood pressure cuffs, tourniquets, bras with narrow straps, clothes which are tight around the chest or arm, and tight jewellery or watches may reduce lymph flow.

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